Mad Movements and the history of lived experience advocacy
Before lived experience experts were recognised as key to mental health research and policy, and before there was greater general awareness of what “Public and Patient Involvement”, service users and lived experience experts can contribute, mad activist movements and survivor groups were fighting for recognition and shared power in decision-making. These groups have been pivotal in shaping the landscape for lived experience, but sometimes their methods and language are contested as "controversial".
Global launch event at the World Congress for Public Health 2026
Our commitment
Western/non-Indigenous models of health practice frequently overlook place-based wisdom, underestimate the role of culture, community, land, and identity, and operate in vertical or siloed systems. This initiative will establish a dynamic ecosystem connecting partners across multiple sectors, including mental health, public health, planetary health, and Indigenous-led networks. Together, we will build connected, equitable, and culturally grounded systems of prevention and care, and develop policies and practices able to promote health at all levels as the critical foundation for flourishing people in thriving societies for all.
Our approach
This short-term action group (STAG) is a two-year, globally coordinated programme designed to build the operational vehicle and functions to strengthen equity and social cohesion across communities and structures. We are creating a “home” for networks within existing global entities to foster a reciprocal, multi-sector collaboration. We will bring together voluntary members, fellows and interns to advance community-driven approaches towards improved wellbeing for indigenous peoples.
Replay our launch webinar!
Our objectives